Mason CARES intervention reduces stress and feelings of burden of family caregivers of older adults with dementia

Mary Cunningham — Wed, 29 May 2024 15:50:53 +0000

Mason CARES intervention reduces stress and feelings of burden of family caregivers of older adults with dementia Mary Cunningham Wed, 05/29/2024 - 11:50

In This Story

Dr. Cathy Tompkins

Gilbert Gimm, PhD, FGSA

According to the U.S. Centers for Disease Control and Prevention, 80% of those living with dementia receive informal care from family members or friends. This equates to 16 million family caregivers in the U.S. However, caring for family members with dementia is often associated with increased caregiver burden (which includes emotional, physical, and financial strain), stress, and worse physical health for the caregiver.

Catherine Tompkins, principal investigator, professor of social work, and associate dean of faculty and staff affairs in the College of Public Health.

A recent study published in the Journal of Applied Gerontology, led by George Mason University researchers, found that a 9-week online stress management intervention program for family caregivers reduced burden scores by 15% for 97 family caregivers of older adults living with dementia. The Stress-Busting Program for Family Caregivers TM, intervention was specifically designed to help family caregivers manage their own stress when caring for older adults living with dementia or a chronic illness

“In this study, we found evidence of a range in average caregiver burden levels based on the dementia severity category of care recipients. The findings show that an online Zoom intervention in a peer group setting can be beneficial for family caregivers of older adults with mild, moderate, or severe dementia,” said Catherine Tompkins, principal investigator, professor of social work, and associate dean of faculty and staff affairs in the College of Public Health.

The intervention provided family caregivers with education and strategies to manage stress when caring for someone living with dementia. Examples of self-care techniques included breathing and meditation; troubleshooting behaviors associated with dementia; and peer-to-peer support within a virtual group setting.

Associate Professor Gilbert Gimm

“Reducing caregiver burden and managing stress are critical to the well-being of families. These findings show that effective stress management interventions for family caregivers can be facilitated through online peer groups,” said Gilbert Gimm, first author and associate professor of health administration and policy.

“Mason Caregivers Aiming for Resilience, Empowerment, and Support Study: Assessing Family Caregiver Burden Post-Intervention” was published online in April 2024. Co-authors include George Mason Associate Professor Megumi Inoue, Professor Emily Ihara, Mason CARES Project Manager Shannon Layman, and Master of Social Work alumna graduate Harveen Pantleay. This study was supported by a grant (#2021048) from the Retirement Research Foundation (RRF).

The study is part of a larger project, entitled Mason CARES (Caregivers Aiming for Resilience, Empowerment, and Support), that implemented and assessed interventions for family caregivers.

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Risk of Homelessness or Incarceration among Foster Youth Varies by Type of Disability

Mary Cunningham — Wed, 30 Mar 2022 13:53:37 +0000

Risk of Homelessness or Incarceration among Foster Youth Varies by Type of Disability Mary Cunningham Wed, 03/30/2022 - 09:53

Ages 17-21 are important transitional years as young adults learn to become adults with more responsibilities. Many youth have family members who provide social and financial support to help them during this critical time; however many transitioning out of foster care lack these supports. Without social supports, they face a greater risk of homelessness, incarceration, and other socially isolating outcomes.

A new study shows that the likelihood of a foster youth with disabilities experiencing homelessness or incarceration during the transition to adulthood varies by type of disability. Associate professor of Social Work JoAnn Lee and associate professor of Health Administration and Policy Gilbert Gimm found that youth with emotional disabilities are more likely to experience homelessness and incarceration than those with other disabilities. However, after digging a little deeper, they found that there are other factors that explain the association between emotional disabilities and both homelessness and incarceration: “Our findings did not find statistical significance for an emotional disability when controlling for other variables, contrary to what we expected based on prior studies,” said Lee. “This is especially notable since emotional disability is the disability type people tend to focus on, if they differentiate the type of disability diagnosis.”

Previous studies either grouped everyone with a disability together or focused only on emotional disability. This study found that intellectual or developmental disability, visual/hearing disability, and physical disabilities are associated with a lower likelihood of homelessness and incarceration. Out of the disabilities analyzed, those with a physical disability reported the lowest rates of homelessness and incarceration and those with an emotional disability reported the highest rates.

“This study brought to light the need to tailor social supports and policies to the specific needs of young adults with disabilities, which can reduce barriers to services and improve community participation. In turn, improved access to services and social engagement can ultimately reduce the risk of homelessness and incarceration," said Lee.

Additionally, the research revealed that youth connections to school, employment, and extended foster care support were associated with lower likelihood of experiencing homelessness and incarceration. The study also identified a smaller group of youth who had not yet been evaluated and requires more study because they appear to have the worst overall outcomes.

In the study, nearly half (46%) of youth aging out of foster care were diagnosed with a disability. The majority had an emotional disability (36.8%) and a small percentage of youth aging out were diagnosed with an intellectual/developmental disability (4.3%), visual or hearing disability (6.3%), and a physical disability (1.1%). Nine percent of the study cohort had not been evaluated for a disability.

“We recommend two important policy implications based on our findings. First, transition services for high-risk youth should be bolstered. Second, extending transition services up to age 25 can help to reduce the risk of homelessness and incarceration,” said Gimm.

The paper titled “Assessing Homelessness and Incarceration Among Youth Aging Out of Foster Care, by Type of Disability” was published online in the Child and Adolescent Social Work Journal in February 2022. Researchers did an analysis to identify associations between disability type and both homelessness and incarceration while controlling for other demographic and child welfare system characteristics.

The study merged the administrative data from the 2014 cohort of the National Youth in Transition Database (NYTD) and Adoption and Foster Care Analysis Reporting System (AFCARS). The NYTD outcomes database interviewed youth when they were 17 years old, with follow-up interviews when they reached 19 and 21 years of age, respectively, to find out how they were doing as they age out of care and transition to adulthood.

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Center for Health Equity